May 2019 Newsletter
Helen Eaton • May 12, 2019
Hello
In this Newsletter I'll be
updating you on my upcoming talks, sharing what I've been up to lately and
offering a bit of an insight into an Autism diagnosis.
Talks in May and June
Book online at www.heleneaton.co.uk/events
These are all in Chippenham, but I'd love to bring my talks to your area soon
too!
ASD & Education 10:00-11:30am 17th May
Great for TA’s, schools, professionals, parents and carers.
ASD Education and Families 10:00-11:30am 29th May
This half term event is perfect for friends and family. This
talk is suitable for children over 8 and they can attend for FREE with an
adult.
Autistic Adults,
Anxiety and Successful Lives 10:00-11:30am 5th June
A talk for everyone! Workplaces, professionals and individuals
would all benefit from knowing more about Autism.
I also offer Autism talks and training for public groups, schools and
businesses, please get in touch for more information info@heleneaton.co.uk
A very busy April
April was a fabulously busy month for both my Autism projects and my Leadership
training business. Highlights include:
- Seven class talks on Autism to a primary school
- A talk in Corsham Town Hall introducing Autism to a lovely audience to over of 60 people
- The start of my four-week parent support course
- Early discussions to create Autism courses for a charity, support a Mental Health event and deliver school staff training
- I've designed and delivered a Leading Change talk for an International bank to an audience of over 150 people in the UK, with a much larger number watching across the world
- I've come to the end of delivering two ILM 5 programmes for a local City Council
What diagnosis does and doesn’t offer
Many people don't have the
opportunity to find out what is involved in a Autism diagnosis, and so I hope
this brief overviews helps those of you who wish to know more.
Autism diagnoses can happen at
any age, but most professionals wait until a child is at least 6 years old,
often to rule out development delays or other disorders. There are many adults
who were diagnosed much later in life, some in their 50s and 60s. Remember that
the term Autism is relatively new, although the condition has probably been
around forever. First identified in the 1940’s, Autism research only really
restarted in the 1980’s, gaining momentum through the decades to now, meaning a
diagnosis simply wasn’t available in many people’s childhoods.
The waiting and referral times for diagnosis can be from 3
months to 3 years, and often several appointments with a paediatrician and/or
Educational Psychologist are required before a diagnosis is given. Children are
observed playing and communicating, and reports and questionnaire answers are
provided by a family member and possibly a teacher. In simplest terms there is
essentially a checklist of behaviours and difficulties that a child must match
to achieve a diagnosis.
A diagnosis is useful for many as it helps understand why they
function differently from the 'average' person, and why day to day life and
socialising can be difficult. It is often seen as a light bulb or eureka moment
when everything suddenly makes sense and a new pathway through life can be
forged.
A diagnosis gives protection under Disability Discrimination and
the Equality Act, and can be essential to gain access to some services,
reasonable adjustments and support. This could include an EHCP for schools,
claiming benefits such as Disabled Living Allowance, or a free carer pass to
tourist attractions and events.
Sadly, diagnosis does not automatically mean ongoing access to
support or a medical professional. Many people are given their diagnosis letter
and then waved off in to the work without any further support or services. Some
areas offer short term support after diagnosis, but most adults and children
rely on the goodwill and services of local charities and support groups.
Some families choose to avoid the perceived stigma of a
diagnosis, fearing it may affect their life choices negatively. This is very
much a personal choice, and many work positively with their differences and
difficulties without a formal diagnosis. As a diagnosis is based on observed
and reported behaviours, some adults self-diagnose as they feel they know
themselves and Autism well enough to do so.
However, avoiding a diagnosis and also a ignoring a person’s
difficulties can be extremely damaging and may leave an Autistic person
confused, isolated and more likely to make poor life choices.
Thanks for taking the time to read this and I hope to hear from you soon
Regards
Helen Eaton
info@heleneaton.co.uk
MSc, PGCE
Autism Specialist and Leadership Trainer
HK Eaton Ltd
How to help with new challenges
A chance to talk and share your concerns
Hello I hope you are well and safe, and your plans for the Christmas break are not proving too stressful. It may be a very different end to the year than you would have wished for, but I hope you can all find joy in this festive season. As we get closer to Christmas it’s worth remembering not everyone experiences the festive season in the same way. If you have an autistic family member or if you are autistic: • work together to embrace everyone’s needs • give and take is important - spend some time doing what somebody else wants, and they can do the same for you • explain what’s happening - include why, when, where and how long it will last • not everyone loves a surprise - presents can be planned and bought together • prepare for quiet and calm times before and after excitement • don’t put pressure on yourself to achieve ‘Christmas goals’ • small moments of joy are better than a day packed with expectations and disappointments Best wishes to you all xxx
Autism & self-confidence article explores low self-confidence, focuses on Autistic people, and ways to develop self-confidence
Hello I hope you are well during these difficult times. June is a beautiful month and I'm enjoying looking at all of the glorious roses in bloom on my walks. The flower photo at the top of this email was chosen by my lovely Facebook followers. It's in my garden, although I have been know to stop by other people's gardens and take photos of their flowers too! In this month's newsletter I offer some tips for managing uncertainty. Sadly, I'm currently seeing that lots of Autistic people are really struggling with the uncertainty of the Covid-19 situation. Autism and uncertainty also features in my latest podcast. You can listen on iTunes and Soundcloud. Don't forget to follow me, share and rate me on these apps, as it all helps other people find them. Click on the buttons at the very bottom of this page to find my social media links. Top tips for dealing with uncertainty - Whenever there’s uncertainty try saying “it may be different but it could also be okay. It might even be better.” - Avoid catastrophising (presuming the very worst). Take your thoughts down a different and more pleasant path. - If you’re struggling take each day at a time. Live through that day, and do things rather than worry about things. - Think about what you can control and influence. There are lots of great books and resources out there on circles of influence and control. For example I know I can’t control Covid-19. What I can control and influence is sensible hygiene practices in my home, and the choices I make about socialising. - Don’t fill in your own blanks where there’s uncertainty – get accurate and reliable information. Try and balance that with not obsessing over news story and the latest lists of Covid-19 statistics. - Always seek professional help if your fears and anxieties are overwhelming you to the point that you are struggling more than usual. In my new book, Arna struggles with the uncertainty of school and becomes overwhelmed with anxiety, which explodes into anger. 'Arna and Ruby - An Autism' story can be ordered on my this website's shop page and on Amazon. It's a graphic novel and a fully illustrated guide to Autism, perfect for older children, teens and adults. I hope you stay safe and well. Regards Helen
Hello I hope you are well and staying safe. This newsletter includes some top tips for home schooling Autistic children. Being at home means I've been able to focus on my 'Arna and Ruby - An Autism Story' graphic novel launch and releasing my first podcasts. This is all in between homeschooling 3 teenagers, walking 2 dogs and practising some Spanish grammar (one of my hobbies!). This beautifully illustrated and informative book is for sale on my website, where you can also listen to the podcasts for free. The first podcast is a lovely introduction to Autism and the second is about social anxiety and social expectations. Top Tips for Autistic children learning at home (great for all children too! ) - Remember you are not your child's teacher. Learning is more than just doing it the right way or getting it right the first time. It's about exploring, testing and trying new ideas. - It's better that the school sees your child's efforts, and sees where they're struggling, rather than helping them submit perfection - Prioritise the subjects that are important for your child, and don't try and achieve everything. - Create a loose structure if you can to the day, e.g. schoolwork is between 10am - 2pm. This means there's some flexibility to the day if needed. - Encourage lots of short regular breaks, every 30 - 40 minutes or so - Timers, small chunks of work and check lists can help them stay focussed. - Don't battle over the things that don't matter. Learning skills and useful facts can be done anywhere, anytime and in any clothes ( even PJs). It's all about making your child feel comfortable and safe enough to learn. - Now's a great time for new and old special interests. Expand what they can learn beyond the school curriculum, and follow any interests in as much detail as they want. - Make something - a scrapbook, blog, website or photo album of the things they've learned, as a record of achievement. - Celebrate every success no matter how small! - Don't forget some fun stuff too! Do the things they like doing together, and share what you're doing too. Best wishes and take care
Hello Welcome to February's Autism newsletter I'll be sharing my news, reminding you to book onto the half-term Autism & Families Talk, and asking for your help. There's a few top tips about socialising, and you can access even more helpful information on my newly updated website. News On the 19th February I will be running another 90 minute Autism & Asperger's Family session in Chippenham. This is a great way to learn more about Autism and parents, carers, relatives and friends are all welcome. Book tickets online and children can attend for free with an adult ticket. It's also a chance to meet other families with similar experiences and full details are at the end of this newsletter. This Spring I'll be returning to Wiltshire Wildlife Trust's care farm to deliver staff training. I'll also be running a session for Doorway, who provide drop-in services for homeless and marginalised adults. I'm looking forwards to delivering the Neurodiversity in the Workplace training for QA Ltd in London and Manchester. I developed this course for QA and it'll be great to see how managers and team leaders respond. I'm also still attending the Wiltshire Autism Board meetings, which help shape Autism services across the county. As I'm so passionate about excellent provision I do tend to challenge the ideas and reports presented, but I'm pleased to see progress is starting to be made. Services I offer talks, public event speaking, workplace training and school visits. My updated website www.heleneaton.co.uk details the services I offer. I can bring Autism to life with an enjoyable and informative talk or training session. I'd appreciate your help this month. I'm looking into providing a teens Autism social group - it may be challenging but hopefully exciting to set-up. If you have any experience in this area please let me know. What sort of services and information do you need? What would you like to see on my website? Would Autism mentoring sessions help you, with online chats to help you support an autistic person at home? Get in touch … info@heleneaton.co.uk Socialising There's lots of useful information on my website, and I thought you might appreciate a few tips. We can make it easier for Autistic children to socialise : · explain what is happening, how long it will last and how it will end, e.g. a party · build in an ‘escape plan’ - it may not be needed but it’s reassuring to know it’s there · let them play freely at their own pace in their own way, avoiding being overly critical · build in opportunities to learn about sharing, turn taking and asking people for things – all useful life skills · allow time to rest and recover after social activities · actively celebrate success - if an Autistic child realises something went well, and they feel good about it, they are more likely to try it or something else new · remember that what is fun for us isn’t necessarily fun for someone else. We all have different versions of fun. · finding a balance - enough socialising to feel wanted, loved and able to enjoy time with other people, but not too much so that they feel overwhelmed or panicked Please share this newsletter, let others know about my website and follow me on social media - it's always much appreciated! Helen
Specific Learning Difficulties include: Dyslexia Dyspraxia Dyscalculia Dysgraphia Attention Deficit Hyperactivity Disorder (ADHD) SLDs affect learning and the way information is processed by the brain. They are different to ‘Learning Difficulties’ as intelligence is not affected and there is an identifiable and very specific difficulty They are often described as hidden disabilities and may go undiagnosed and unsupported. Constantly struggling in school or work can lead to tiredness, low self-esteem and anxiety. Extra effort and energy is need to complete everyday tasks and this can be exhausting. This may cause people to avoid important or difficult things, making it much harder to catch up. With the right support and learning people with SLDs can achieve great things, as they often have a wonderfully different way of seeing and thinking about the world. ADHD A behavioural condition that makes it hard to concentrate and control energy, actions and decisions. Caused by a chemical imbalance, the symptoms may be relived through medication. This can lead to hyperactivity, impulsiveness and risk taking. Professional advice for prescriptions must always be sought, as there are side effects and the doses must be correctly calculated and monitored. Dyslexia Difficulties with the range of skills needed for reading and spelling, along with verbal memory and processing. Specific tuition can help with techniques to help, and these strategies can provide lifelong help. Dysgraphia A difficulty with the physical act of writing which may also be painful. Dyspraxia A development disorder which affects fine and gross motor skills, which are needed for everyday tasks and movements. Physical exercises can help improve skills and co-ordination. Dyscalculia This means that people may struggle to understand maths, patterns, time and measurement. Again additional support and tuition may help develop these skills.
Autism is a developmental condition which means the brain develops differently, causing a person to experience and process the world differently to a typical person. An Autistic person may struggle with: - Social communication, e.g. recognising facial expressions and body language - Social interaction - Understanding social rules, behaviour, and adjusting for different social settings - Strong need for fixed routines, specific interests and hobbies - Recognising and managing emotions - Building and maintaining relationships - Difficulties processing sensory information - Changes, transitions and new places The world is very loud, colourful and demanding of all of our senses. There are lots of social expectations and interactions which can be confusing. Everyday life can be very stressful and overwhelming for Autistic people, who experience the world in a different way to non-Autistic people. Understanding and acceptance of differences is key to success, along with effective support strategies and adjustments. There are 3 levels of Autism diagnosis, depending on the level of support required and how much daily functioning is impacted. Many Autistic people have full and successful lives and careers. The world benefits greatly from Autistic thinkers as they’re often creative, innovative and great problem solvers. The don't always work to the usual social and logic boundaries, often challenging 'normal' thinking and rules. A diagnosis of Autism is given by observing behaviours and asking questions. If a child behaves with a mix of social and communication difficulties, routine or ritualistic behaviours and sensory difficulties it suggests the brain is developing in a way that is defined as Autistic. It is also true that some Autistic people may need care throughout their lives because they also have additional disabilities and learning difficulties. Asperger's Syndrome was the name given to a specific type of Autism until just a few years ago, and is now known as High Functioning Autism These Autistic have average or above average intelligence and are viewed as ‘high-functioning’ although they still experience the same difficulties as other Autistic people. Pathological Demand Avoidance (PDA) is a type of behaviour within Autism, although currently rarely formally diagnosed. Anxiety may cause those with PDA to avoid every day requests to an extreme degree, and they may appear controlling and difficult as they struggle to respond to expectations and demands.
Hello In this newsletter I'll share some Autism statistics that might surprise you, let you know what I've been up to, what's coming soon, along with some information about me. There's a good chance you haven't yet met me, and so an introduction and explanation about what I do and why I do it might be helpful. Autism Top Tip = Keep It Visual! By this I mean it's easy for an Autistic person to become distracted or overloaded by everything that's going on them. Using anything visual - photos, videos, icons, diagrams - is a great way of sharing information and instructions. Visuals are also consistent, long-lasting and have a low sensory impact (they don't talk back!). So remember to don't just say it - show it! I take photos of everything I need to remember, so I can look back on them in my own time. I actually find photography very calming and enjoyable, and always use my own images on my website and emails. Nature's colours at this time of year are spectacular. Why is understanding Autism important? There is clear statistical evidence that understanding Autism is incredibly important, based on the number of Autistic people, the lack of knowledge in recognising and supporting autism, and the lengthy impact of long delays in receiving a diagnosis. It's important to know that after diagnosis many families are waved away from the consultant with simply a few information leaflets and no further support. If we all increased our knowledge and understanding of Autism, hundreds of thousands of lives could be improved in the UK. In the UK there are around 100,000 children diagnosed as Autistic, with many more still undiagnosed due to a number of factors, (including reluctance, mis-diagnosis, lack of knowledge). Around 70% of Autistic children are in mainstream education. In England the average waiting time to start diagnostic assessments was 4 months in 2016, with the longest waiting time in 2017 being 26 months. (British Medical Association) The time taken to actually issue a diagnosis is significantly longer. Research suggests less than 16% of Autistic people are in employment, are often overqualified and over skilled for the roles that they’re in. My own experience has shown me that many schools don’t fully understand the needs of Autistic children, leading to high levels of distress in the classroom, exclusion, and families choosing to home educate. Who am I? The most important things to say is that I live and breathe Neurodiversity every single day. None of my family think or process the world in a typical way, and I can trace Autistic traits, Dyslexia, and more throughout my family tree. I’ve spent the last 15+ years delivering leadership and business skills training to some of the UK’s leading finance and technology companies. In 2011 I gained a Post Grad qualification in Primary teaching. After one of my own children was diagnosed as Autistic, I then began to specialise in Autism. For 18 months I worked as a trainer for a leading Autism social enterprise, delivering webinars and workshops across the South West. During that time I was very privileged to be a guest on Michael Rosen’s BBC Radio 4 Word of Mouth show, talking about Autism and communication and I have spoken at a NAS Conference on Autism and socialising. I went on to launch my own Autism business in 2018. What do I offer? Workplace training on Autism and SLDs School staff training Assemblies and classroom talks Public speaking for groups, events and conferences Leadership and Business skills training incorporating Neurodiversity Total SDI™ profiliing, team building and conflict skills Why do I do what I do? Nothing can replicate the wonderful feeling I get when I hear that the work I’ve done has made a positive difference to a family or individual. I also love walking out of a classroom or training room knowing that I have increased knowledge and understanding. I also work to dispel the myth that we are all a little bit Autistic. We are not. Autistic traits are human traits that we all recognise, but for Autistic people they can be present to such an extreme degree that some everyday tasks become impossible. Thinking differently has led to my own life successes and I see the same in my children. I want to help develop opportunities for Autistic people to live and work to their potential, and remove the unnecessary barriers society puts in place. The smallest of changes can make the greatest of differences. I currently don’t receive any funding or grants for the work that I do, and so charge a fee for my services. I also continue with my leadership training work, as that offers lots of exciting opportunities for me to develop my skills even further. Here are some of the topics I talk and write about: Autism in adults and children Sensory needs Autism and education Autism in girls and women ADHD, Dyslexia, Dyspraxia, Dysgraphia, Dyscalculia Self-care, staying organised and developing healthy routines Developing emotional awareness and managing emotions Managing stress, anxiety and meltdowns Friendships, relationships and social understanding Challenging behaviour and support strategies Please do get in touch if you would like more information or have any questions.